Tuesday, May 5, 2009

Baby Jenna Update

Sorry it has taken me so long to update, we have had a lot to process lately.

Things we know
1. Jenna has hydrops really bad, the fluid seems to be getting worse around her body
2. She tested positive for Trisome 21, which is Down Syndrome.
3. There is also a problem with Chromosome 18. They do not know alot about 18, but the Genetic counselor put it like this- It is like writing a letter if you were to forget a word or two the letter would be readable, but if you are missing a paragraph you couldn't read it and that is a problem. Well, she is missing a paragraph. Kurt and I got tested Friday to see if we are carriers for this genetic problem. We will know the results on Thursday. Knowing that she has a problem on 18 means that she would have more mental problems than just the Down Syndrome.

We go back to the doctor on Monday and we will have all our test results back and do another ultrasound to see how things are going. Then hopefully the doctor can give us some good insight as to what will happen and when.

For now we are just taking things one day at a time. I have been going in and doing blood pressure checks and hearing her heart tones to make sure we are both fine. They are still worried about me mirroring her and getting sick, but so far I have been fine. We pray that the Lord will do what is best for our sweet little Jenna, even if means taking her from us too soon. With his help we can get through this! Thanks for all the prayers and thoughts sent our way- we love you all and appreciate it!!


Amie said...

I stumbled across your blog through a friend and I hope you don't mind that I read that incredibly personal post. I just want you to know that, to some small degree, I can relate to your fears right now. I remember when we found out our Brody had "genetic problems". To say it is terrifying doesn't begin to describe. I just want you to know how special these kids are. You must be wonderful,strong,faithful parents to be given such a blessing. I am wishing you all the best. Also, through my blog, you will find the blogs of some friends with Down Syndrome children (Nielson's and Bird's)if it helps at all.
My prayers will be with you!

--Amie Harwood

Jaden and Stacy said...

This just makes me cry. You are so strong! The Lord will bless you and comfort you in this hard time. I am so Sorry to hear about your little Jenna. We are keeping y'all in our prayers. I hope that you stay well. Please keep us updated. I check your blog every day to see if there is anything more that you know. I will be checking it too see what you find out. We are here if y'all need anything.

Eric and Brooke said...

Oh Tara, I am so sorry!! I am thinking about you and keeping you in my prayers!! This just makes me cry!! You guys are so strong!

Nathan and Karli said...

Tara, I just want you to know that I think you are an amazing person and such a strong and wonderful mother! I am praying for your sweet baby Jenna!

Deby said...

Kurt and Tara, I read the comment from Kurt's Aunt and I think it is so perfect in this situation. It talks about God not stopping the raging storm for his child, but that he calms the child. It seems to be so true. While there have been many tears shed and hearts so heavy for Jenna, you both seem to carry a peaceful knowledge that this is not the end, but merely a beginning for her and your family. I think you are both examples to all that you know Heavenly Father's plan and you are willing to except it, the easy and the hard. I am proud of your strength and pray that you will continue to be comforted with peace. He is there for you and so are so many family and friends. We love you both. MOM

Sha said...

Tara, please know that your family is in our prayers and we hope that you find peace in all of this.

Dustin and Matasha said...

Hi Tara! We just wanted to tell you we are thinking of you. You are in our thoughts and prayers and we know that the Lord will bless you through this hard time! Keep us poste, and HAPPY MOTHER'S DAY! Love ya

Karen Kunzler said...

Tara, we will continue to pray for you, your family, and especially Jenna! We love you!!!!!

Katy said...

I love you guys so much!