Friday, March 26, 2010

Last week we took Jenna up to Primary's for an eye appointment. Overall it went pretty good. We really liked the Doctor! Primary Children's is in a league of its own when it comes to doctors. They are angels sent to help kids. They want nothing more than to help them!

He said that Jenna definitely has an abnormality in her left eye called excavated disc anomaly. Pretty much means that her optic nerve is in a cup shape instead of round. He said that she could very well have vision in that eye. He said that he could tell that electricity was definitely going into the eye because the Iris would open and shut. She also would follow really well when he moved his finger sideways and up and down. So that is GREAT! He wants to see her back in 6 weeks to make sure that she is still following, it is important to make sure that the left eye will follow on its own (when the other eye is covered up).

We were supposed to do an MRI the next day and that got moved to this past Wednesday. We got there at 9:30 that morning and waited for an hour and a half!! I tell ya I am really sick of waiting! They had to sedate her for the MRI, which meant a needle poke. She does not have the best veins, but the lady got it on the first try! Props to her! The MRI lasted for 45 minutes and then they were supposed to do an ABR hearing test. Well...the nurse did not give her enough anesthesia so she woke up immediately after the MRI and she was less than happy! So we get to drive back to Primarys in another month and she will have to be sedated again! I tell ya!

We met with Dr. Park (wonderful doctor) and he said that the MRI showed that the ear structure is there and she also has the cord that connects to the brain. YEAH!! She still has profound hearing loss, but this means that she could get cochlear implants. Without the structure and that cord, nothing would help her hear. They took ear molds to get her hearing aids ordered (which will be pink and silver sparkles) and they will try those for 6 months. In order to get implants you have to try hearing aids first. Hopefully she will get some hearing with them:)

Jenna continues to amaze me! She is 12 pounds and wearing 6 month clothing. She is rolling over now, which amazes lots of doctors. Jenna will defy all odds, I know she will! Whatever they say she can't do, she will prove them wrong! She is here isn't she!

Gavin loves Jenna more than anything and is really upset when he is away from her. I believe he is her angel on earth. I love my kids and have been ever so blessed to have them!

Tuesday, March 16, 2010

Visit from Grandma Johnson

Grandma Johnson has been in Utah for the past couple weeks, and we were so glad that she came to Salina for the weekend! We all went bowling and had so much fun! Gavin loved throwing the ball and watching the pins go down. Grandma made the mistake of giving him a treat, after he had one he sat and starred at her until she surrendered all the candy to him! Later that day we all went to El Mex, my favorite!!! Then on Sunday we all got together for dinner! We all miss Grandma so much and LOVE when she comes to visit! I had to get a 4 generation picture with her, Dad, Jenn and me. Thanks Vance so much for letting Grandma come visit for such a long time, we are sure you miss her:)

Wednesday, March 3, 2010

What a week!

If I could remove last week from our lives I think I would:)

Monday Gavin and I woke up very sick, I marched us into the doctor immediately. I was so lucky to have a sinus infection AND bronchitis and poor Gav had a sinus infection also. Monday was horrible we both just cried all day wanting to feel better. By about Thursday we were doing pretty good. Gavin and I went to a few of the 2A games, we were ready to get out of the house. I kept praying that Jenna baby would stay healthy, but really how was she supposed to? We were all sick and there was no way we could stay away from her. She had a little cough but really that was about it. I really didnt think she was sick. Friday she started throwing up a little bit and so Saturday morning we decided to take her to the ER just incase. Well of course she had RSV and Pneumonia. They admitted her to the hospital. They tried getting and IV in so that she wouldn't get dehydrated. Well after three tries and a lot of screaming they stopped to give her a rest. I was able to get some pedialyte in her so they did not try again. I felt so bad for her! She was really good while in the hospital, mainly sleepy. They did breathing treatments and also treated her with an antibiotic.

I stayed with Jenna at the hospital and Gavin got passed around. He took it really hard, he wanted to be with his whole family! He is such a tender hearted little boy, I just love him! I miss him when I have to be away from him. He couldn't see Jenna because they dont allow kids under 14 back. That was really hard for him.

We finally came home today and Jenna has been doing really well. Her oxygen is up to 1/8 of a liter and I am still giving her breathing treatments. She is eating much better and is happy to be home!

Being in the hospital is not the funnest, but I am able to enjoy some things.

I LOVE hospital food, I think because I dont have to cook it or clean up afterwards.
I LOVE hospital ice and coke, the only down fall is I drink 3 a day instead of 1.
I LOVE that I had a room with a view. We made fun of that the first day, but I watched lifeflight land twice and that was pretty cool. I have never seen it that close.
I LOVE watching the nurses. There still are some really great people in the world. Most of them treated Jenna as if she were their own. It really helps knowing that they want to help her get better and they really care for her!

I HATE that it is Jenna who is sick. I would do anything to take that from her. There is nothing harder than seeing your kids in pain.

Thanks so much for everyone who was worried about Jenna, we recieved many well wishes and treats:) Thanks Ash and Maradee for the yummy ice cream and a much needed visit!! I am so greatful for wonderful in-laws and a wonderful mom to help with Gavin! We are very blessed!