Monday, May 18, 2009

Crazy Roller Coaster Ride!

I keep telling Kurt that we are on a roller coaster ride, we go up and down with emotions and feelings it is just crazy!!!

We saw the doctor last Monday and amazingly enough the fluid (hydrops) is getting somewhat better. There used to be fluid around her belly, lungs, heart and head. Well now it is just around her head. That is great! Then of course she said that fluid is starting in the 3rd ventricle of her brain, it is not too bad right now but could get worse. The condition is managable if she is born. She is growing right on schedule, she weighs about half of a pound.

Our hopes were not too high on Monday night, we were thinking the worse. Then on Tuesday we met with the Genetic counselor to find out about the Chromosome 18 problem. On a regular Chromosome you should have a long arm and a short arm, well baby Jenna has 1 regular chromosome and then her 2nd one has an extra short arm and is missing part of the long arm. The deletion isn't bad, it means that she might be a little slower and prone to a few things.

So Tuesday we left with the thought that maybe this isn't as bad as we were thinking. Maybe our sweet girl will be born and get to come home with us. There are still risks that she might abort herself, be stillborn or she could possibly make it. The risk of me getting sick are lower with the hydrops getting better.

So you see what I mean by roller coaster ride? Each time we go to the doctor it is just crazy! One time it is good news the next time it is bad news! We just keep praying and hoping for the best! Thanks to my dad for some amazing blessings- I have to say that I know they are part of this miracle that seems to be happening! Without the church and Gospel- think of where we might be right now! It is such a blessing in our lives! Thanks to all of your support and prayers- they have truly helped!


susiefarns said...

I'm glad to hear some good news. Hopefully that will continue. Keep me updated.

Tom and B said...

we're keeping you in our prayers. it's so good to hear the fluid retracted a little! your faith during this hard time has really been amazing...and a big inspiration to me :). Keep puggin' along on the "roller coster ride".

Tennille said...

Every time I read one of your posts I get all teary eyed! You are amazing and a great example to me of someone with a lot of faith. I'm glad you were given some good news.

Amy Rosquist said...

I'm so glad she is doing better and I'm glad your health is not at such risk now. We're happy for you.

Mindy said...

Oh Tara, I can't even imagine the ups and downs you have been through lately! It is great to hear some good news... You and your sweet Jenna will continue to be in my prayers!

Deby said...

I love the new name tag. I also love the middle name. It's kind of popular in our family. Jenna is fortunate to be blessed with parents so special! You told me one day you wanted to check your ticket because you didn't think you would have got on this roller coaster- but I'm amazed how you have taken the turns and twists and highs and lows and gone with it. No looking back, only ahead with such optimism. I am proud of you both and the way you have excepted everything. I pray all will be well.

Jaden and Stacy said...

I am glad that you have gotten some good news! We will continue to keep y'all in our prayers! Thank goodness for the priesthood! We are truly lucky to have it! I can't wait to hear more good news.

Meesh said...

Hey Tara,
I just stumbled onto your blog and was shocked to hear about your little one. I'm glad I did though because I want to add my prayers for you and your family. Joe always tells me that Heavenly listens to mother's prayers the most so as a fellow mother I will add sweet Jenna to my prayers. Hope all goes well. Hang in there we love and miss you guys. MiShele Shaheen

Meesh said...

Hey Tara,
I heard through the grapevine you were looking for me. Sorry I didn't leave an email. I don't have a blog so you can email me @ I would love to talk.

Shadoe said...

Ashlee left a comment on my blog that you were trying to find me. I do have a blog: it is private but if you would like an invite email me at

I am so sorry to hear about you baby girl. I know that special babies come to special parents. You guys are amazing people and family and will be blessed through these trials. Keep the faith!!

What a cute family you have. I wish you luck and will keep you in our prayers.