Thursday, January 21, 2010

Poor Jenna Baby!

On the 15th I took Jenna up to Riverton hospital to do another ABR (hearing) test. She is only four months old and has endured so much! I sat for an hour and held my sweet baby while they did the test. They had to put electrodes on her head in 4 spots, tubes down both ears, and also a headband looking thing on her head. The instructions for the test were to keep her awake 3 hours longer and wake her up 3 hours earlier and dont let her sleep the morning of the test. I thought YA RIGHT!! She is a baby!! We did pretty good, but I still didn't think she would sleep. When we got it the room I said a quick prayer to ask my Father in Heaven to help me hold her and comfort her so she would sleep. Minutes later she was sound asleep and so peaceful. I knew I wasn't the only one holding her. I sat and looked at her and thought about all she has been through in her short life and how much pain she might have been in at different times. People say they are amazed by my strength, but I am in awe of hers! She is so strong, what an amazing little spirit!

Her test did not go well, they could not get responses in either of her ears. Devestated is an understatment for how I felt for her. It seems like she can't catch a break. We will be going to Primarys to have an MRI done to see what the structure of her ears is like and to see if hearing aids or cochlear implants would help. I hope that there will be something to give her some hearing.

On a good note we were able to get rid of the Apnea monitor! I was so happy! The oxygen is still here, but she doesn't need it too much. Hopefully soon we can get rid of it!

I want to say Thanks to all of you who follow my blog and are so concerned about Jenna. We feel your prayer and are so thankful for your comments! Jenna is a wonderful baby and I am SO blessed to be a part of her life.



8 comments:

Eric and Brooke said...

What a sweetie! She HAS been through so much and is so strong! I hope everything works out for her so she can have some hearing. She is just so precious!!

Deby said...

Tara, you are amazing. Jenna is an absolute living miracle. As hard as it has been, you have been part of a miracle, along with your sweet family. You know where to turn for help and guidance and I believe that is a large part of why Jenna was able to make it to this earth and thrive. It is so easy to love Jenna and feel her spirit. She is a fighter for sure! Love, MOM

Tom and B said...

She is one strong baby! I agree with your mom, you are amazing! I hope there's something they can do. I'm glad you got out of the house for a night. We all need that once in a while! Miss you guys!

Jaden and Stacy said...

I am sorry to hear about her hearing but she obviously a strong little girl. Tara, you are so strong. I don't know how you do it. I don't think I am strong enough. You are an amazing mother. Jenna is soo lucky to have a mom as great as you. Good luck with everything at primarys. I hope they can do something for her. Good luck, we will keep her and your family in our prayers.

LuDene Barton said...

Hi Heaths: I have missed you sense you left. Gavin and I have really enjoyed each other the last few weeks, so glad I could help out. Oh my, what a sweet baby Jenna is. She brings so much love and strength with her. She has really blessed all of our lives for the better. I know your heart's are aching and their is so many things that are unknown to you now, Know that your are all loved by many and that many prayers are going heaven word for your family. I know it's so easy to get discouraged, that's Satins plan. but if you can endure, and Heavenly Father will help you, you won't be able to count the blessings. I Love you Grandma B.

Karen Kunzler said...

Isn't is amazing how strong these little spirits are? I don't know if you will have to do some sign language also, but I have told all my kids sign language and used the Signing Time videos. They still love them and they both still do the sign language here and there even though they can talk. Good luck with everything.

Sha said...

She's beautiful Tara! You guys are doing a great job and you're so strong. Thanks for the inspiration.

Dani said...

Tara,
I've been following your blog and keeping up with your little miracle! Can I say I know how you feel? I remember them telling us that our Paisley couldn't hear. Ive been through countless ABR tests and although I don't know what it felt like to go through all you have with your baby- I do know that it's heart wrenching to hear that she can't hear. But can I just tell you that cochlear implants are AMAZING! I could write a novel about how great they are- or I could send you an invite to my blog and you can read all about it yourself. (my email is jaredhallows@msn dot com) Anyway don't hestitate to ask me all about cochlear implants because I know all about them. Paisley is a part of our world because of cochlear implants. I can't imagine her not talking, hearing and being in our world. Jenna can have that too. You really are an inspiration to so many people. Good luck!